醫生都說「四肢是海綿」罕病媽媽無法生子，現在「不可能」的全家福照證明她巨大的母愛連老天都動容了！

生命的奇蹟！對22歲媽媽雪莉 (Sheree Psaila) 而言，懷胎是件幾乎不可能的事，因為她的生理缺陷讓她無法像常人一樣抱起、安撫自己的孩子。根據英國《每日郵報》報導，她天生就有一種罕見的基因缺陷：手臂和腿都沒有肌肉。她表示：「他 (孩子) 哭鬧時我無法馬上到他身旁

September 29, 2016

編輯：ｔｈｉＣＣズッカー

世界

生命的奇蹟！對22歲媽媽雪莉 (Sheree Psaila) 而言，懷胎是件幾乎不可能的事，因為她的生理缺陷讓她無法像常人一樣抱起、安撫自己的孩子。根據英國《每日郵報》報導，她天生就有一種罕見的基因缺陷：手臂和腿都沒有肌肉。她表示：「他 (孩子) 哭鬧時我無法馬上到他身旁並將他抱起來，我必須等別人為我抱起他」。不過即便養育孩子對她來說難上加難，光是她成功生下孩子就已經是奇蹟一樁，一起來看看她的故事吧！

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY

Caters News Agency

雪莉一生下來就患有「先天性多發性關節攣縮症」(Arthrogryposis Multiplex Congenita)，導致手腳無法正常長出肌肉，醫生當時警告雪莉的父母，她恐怕無法活超過1歲。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY

Caters News Agency

廣告1

歷經了20手術都徒勞無功，醫師語重心長地建議父母讓雪莉坐輪椅，送讀殘障學校。但雪莉仍憑著自己的意志力，在5歲那年挪動雙腳成功跨出了第一步，也不畏同學霸凌，堅持每天上學去。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY

Caters News Agency

雪莉就讀澳洲技職學校期間，遇見了同樣有生理缺陷的克里斯 (Chris)，他因為遺傳疾病導致脊椎下部比常人脆弱，兩人在2015年5月完婚後，最大的希望就是建立一個可愛的家庭。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY

Caters News Agency

廣告2

然而一切沒有想像中順利，雪莉初次懷胎時不幸流產了，但兩人仍抱持希望，第二次懷胎終於成功。雪莉說：「醫生都說我可能無法生孩子，雖然他們沒告訴我確切原因。」

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY

Caters News Agency

廣告3

身高只有120公分左右的雪莉成功懷胎，都讓醫師直呼這是個奇蹟！接下來，夫妻倆搬到了墨爾本，以剖腹生產的方式迎接孩子。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY

Caters News Agency

幸虧男嬰海登 (Hayden) 一生下來就有2.5公斤，身體狀況十分健康，沒有任何殘疾或遺傳疾病。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY

Caters News Agency

這樣的結果讓雪莉與克里斯喜極而泣，不過養育孩子的困難才正要開始。四肢無力的雪莉連起身靠近孩子都有困難，更別提將他抱在懷中。

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY

Caters News Agency

夫妻兩人因此雇用了一名看護幫忙照顧海登，一週來家裡5天。不過養育孩子的重責大任主要還是由克里斯擔當。雪莉說：「當我們去游泳時，我也會想要在游泳池裡抱住他，教他游泳，就像克里斯那樣。」儘管生活困難重重，一切都無法阻止雪莉當個好媽媽的夢想。雪莉一邊帶孩子，一邊繼續完成在技職學校的學業，已經可以說是憑著母愛成功克服了生理障礙，過著常人的生活！

Pic from Caters News - A young woman who was told by doctors that she wouldnt live past her first birthday is now a miracle mum. Sheree Psaila cant hold her own baby boy without assistance and is physically unable to bathe him or change his nappy on her own. She was born with a rare congenital condition called arthrogryposis multiplex congenita (AMC), meaning that she has virtually no muscle tissue in her arms or legs and is barely able to bend her joints. Sheree has had approximately 22 surgeries to help alleviate the symptoms of her AMC, including muscle transfers and tendon releases, but her condition remains largely unchanged. SEE CATERS COPY

Caters News Agency

來源：Little Things

把雪莉的故事分享出去，讓更多人看見吧！

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